Down's Heart Group

About 47% of babies born with Down’s Syndrome also have some form of congenital heart defect. Some of these will require surgery and as this often takes place within 3 to 6 months after birth, families very quickly discover the need for helpful information in a format that they can easily understand.

Down’s Heart Group is a UK charity (Charity No. 1011413) which works specifically in this field providing support and information by parents for parents. Their website has an information section containing links to pages which describe the different heart conditions with simple diagrams as well as other topics which may be helpful such as one describing what to expect at the time of surgery.

Comments are closed.