Category: Caring & Carers


Stepping Stones DS – supporting parents of children with Down syndrome

My wife has put all the great and unique skills she learnt in the early years of raising our son to good use. She looks after a little girl with Down Syndrome two mornings a week at a local nursery. The little girls mum has put us in touch with a support group that operates in [...]

A hug for my brother – sibling support groups

Its my daughters birthday today. She’s nine years old. But her best friend, Emma, has also just turned nine and she had her birthday party last Saturday. It consisted of a sleepover with a handful of Emma’s friends, including my daughter. I didn’t envy Emma’s parents!

My wife picked up my daughter on Sunday morning and brought [...]

A Life Skills Coach can help enhance the life of a Special Needs Adult

For special needs adults living independently can be a bit of a struggle. The things that many of us take for granted are hurdles in the lives of many special needs adults. However even with the difficulties that they may face in achieving their independence many special needs adults are not only willing but have a [...]

Riven Vincent’s decision illiustrates social media power

‘I can’t cope,’ says Riven Vincent after receiving letter telling her no more respite help is available for six-year-old Celyn [...]

Never Alone – a support site for all supporters and carers

I recently received a message via my Twitter account (why not ‘follow me’) asking me if I’d like to link to a site called Never Alone. But, as will be apparent if you have had a look around the site, I do not have a links section as such. Effectively the individual posts act as links [...]

Contact a Family – for families with disabled children

Everyday my children return home from their respective schools seemingly laden down with bits of paper – newletters, information about up-coming trips, pleas for money for this or that, forms to fill in for after-school clubs, etc, etc. Occasionally there’s also information about stuff external to school. My son’s school, the Ridgeway Community School, is especially [...]

Newlife Foundation for Disabled Children

This is another charity featured in the ‘parent information’ section of the webiste for my son’s school. I have not come across the Newlife Foundation for disabled children in any personnal capcity. I would, as usual, welcome comments/feedback from anybody reading this that has.

Disabled children have been at the heart of the charity since 1991. As [...]

21 & Co (Down Syndrome support group)

21 & Co's logo

I can’t quite believe that I haven’t put a post up about this charity before now. Considering we attended their excellent speech therapy sessions at the Langdon Down Centre (I think they have moved from there now) for a number of years when my son was younger.

As they say on their website [...]

Death of mother and disabled daughter after refusing help

Another sad sad story hit the media headlines a couple of days back. This time it appears that the mother of a disabled daughter died suddenly leaving the daughter (apparently paralysed from the neck down) to stave to death next to her.

What sets this apart from other incidents that tend to hit  the headlines is that in [...]

Aldershot Garrison Special Needs Group

Living as we do in Farnham this group is obviously local to us. At Christmas time we often get a flyer in my son’s school bag promoting their Christmas party.

The group aims to provide a meeting place and support group for other parents and carers of special needs children. The group also arranges trips and special [...]