Posts Tagged ‘carers’


Stepping Stones DS – supporting parents of children with Down syndrome

My wife has put all the great and unique skills she learnt in the early years of raising our son to good use. She looks after a little girl with Down Syndrome two mornings a week at a local nursery. The little girls mum has put us in touch with a support group that operates in [...]

A hug for my brother – sibling support groups

Its my daughters birthday today. She’s nine years old. But her best friend, Emma, has also just turned nine and she had her birthday party last Saturday. It consisted of a sleepover with a handful of Emma’s friends, including my daughter. I didn’t envy Emma’s parents!

My wife picked up my daughter on Sunday morning and brought [...]

Riven Vincent’s decision illiustrates social media power

‘I can’t cope,’ says Riven Vincent after receiving letter telling her no more respite help is available for six-year-old Celyn [...]

Protecting the vulnerable from the vulnerable

Driving home from work this evening I heard a news story that made my heart lurch.

The Guardian neatly surmised the story in this headline Mother admits killing her 12-year-old autistic son after making him drink bleach. It’s reported that the mother, Satpal Kaur Singh, feared social services would take the boy away. She has admitted manslaughter [...]

Never Alone – a support site for all supporters and carers

I recently received a message via my Twitter account (why not ‘follow me’) asking me if I’d like to link to a site called Never Alone. But, as will be apparent if you have had a look around the site, I do not have a links section as such. Effectively the individual posts act as links [...]

Contact a Family – for families with disabled children

Everyday my children return home from their respective schools seemingly laden down with bits of paper – newletters, information about up-coming trips, pleas for money for this or that, forms to fill in for after-school clubs, etc, etc. Occasionally there’s also information about stuff external to school. My son’s school, the Ridgeway Community School, is especially [...]

21 & Co (Down Syndrome support group)

21 & Co's logo

I can’t quite believe that I haven’t put a post up about this charity before now. Considering we attended their excellent speech therapy sessions at the Langdon Down Centre (I think they have moved from there now) for a number of years when my son was younger.

As they say on their website [...]

Routine

There are some things you can’t escape from. For us its ‘routine’.

No doubt about it. My son likes routine. To illustrate.  We have a very simple calander on our frigde door. Its just a piece of laminated paper with the days of the week on it, in a row,  Monday to Sunday with barely enough space [...]

The Calvert Trust

Its funny how you can stunble across things as you bumble through life.

I was half watching CountryFile as I prepared dinner yesterday. At they end of the programme there was a trailer for something called Thrillseeker and the website address was flashed up. Wondering what this was about and whether or not there might be something [...]

Death of mother and disabled daughter after refusing help

Another sad sad story hit the media headlines a couple of days back. This time it appears that the mother of a disabled daughter died suddenly leaving the daughter (apparently paralysed from the neck down) to stave to death next to her.

What sets this apart from other incidents that tend to hit  the headlines is that in [...]